I still haven't come down with the cold that everyone else has 👍 and I'm getting more excited about the treatment on Monday. Need to get my backside in gear and start to think about what I need to take... How windy has it been today?!
I've not really talked about my condition, so here we go.... the highlights...
- Oct 2015 extremely exhausted, couldn't think straight, started to forget words. Put it down to a stressful job and having 2 year old twins.
- Jan 2016 numbness in my left foot which spread up my leg and up my side. Had blood tests and back x ray. All clear so referred to neurologist. Decided to pay private as nhs waiting list was so long, who arranged for mri.
- April/May 2016 mri showed lesions. Now had numbness from left toes up to left eyebrow. Vision on left eye was very "patchy" and colours looked different. Legs felt very heavy when walking.
- Summer 2016 had lumbar puncture and some electric eye test thing (can't remember proper name). Saw registrar who confirmed I had optic neuritis in both eyes and the lumbar puncture results supported diagnosis of RRMS. By now, my right side from my toes had gone numb up to my arm pit. Walking was getting difficult.
This led on to blood tests in preparation for lemtrada.
So here I am now. Still got numbness in both sides, severe fatigue, can't walk very well without holding on to husbands arm, seem to be able to fall over thin air, poor concentration, poor memory, can't stand without discomfort, very tense and painful back, painful legs and sides at night, really stiff and in pain when I first get up in a morning... it's all fun and games 😊 and 36 in 3 days 😱
One the plus side, it's nearly wine o'clock 🍷
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